The Autistica Network brings together autistic people, families, researchers and professionals who work with autistic people to create create research that can make a meaningful difference to autistic people. Members are sent newsletters, updates and research opportunities by email.
The Autistica Network:
- Focuses on research about what matters to autistic people. We prioritise sharing research that aligns with our 2030 Goals, after listening to autistic people about what matters most to them.
- Involves community members in research, so autistic people can shape research, helping it be more meaningful and impactful.
- Makes it easy to take part in research.
About the Autistica Network
Who could join the Autistica Network
The Autistica Network is for:
- Autistic people, family members or carers of autistic people
- Researchers
- Anyone who works with autistic people in health, education or social care settings
- Anyone who wants to know more about autism
Examples of available opportunities
We will tell you about opportunities to participate in our research and carefully selected projects led by partners, such as universities. We will also share opportunities to shape our campaigns, share your your story or join us for filming or photoshoots.
We carefully choose which research we share with the Autistica Network. We have six ambitious Goals we plan to reach by 2030 based on community priorities. Most of the studies we share will align with our Goals.
Most research doesn’t happen in a laboratory. It could be as simple as taking a survey. Or there might be more involved opportunities, such as advising on the design of a study. There is a lot of research that you can do from the comfort of your home. Other research might involve you doing more, such as trialling a new therapy or mobile app.
If you want to join, but don't want to take part in research
You can join the Autistica Network even if you don't want to take part in research. We understand not everyone has the time or interest to participate in studies. We'll also send you campaign updates, opportunities to share your story and the latest news in autism research.
If you want to take part in a study
If we email you about a study and you'd like to get involved, you can respond to the research team directly. We'll include their contact details in the email. They will give you further information about their work, and you can decide whether to go ahead. You can always leave a study if you change your mind.
Data protection and confidentiality
Your personal details will be stored confidentially and securely. We only ask for basic information when you join, as well as some optional questions to help us learn more about you. We ask for your postcode and contact details so that we can send research opportunities that are local to you. For more information, read the Autistica privacy policy.
If you decide to take part in a study, the researcher will ask you for more information. We check that researchers have followed a detailed ethics process to ensure your data is secure.
Ethical research that is appropriate for you
All research shared with Autistica Network members is approved by our expert neurodiverse team. We would only share research that is neurodiversity-affirming, and prioritise studies aligned with our 2030 Goals. You will always be fully informed about a research project before you decide to take part, which can give you a chance to decide if the study is the right fit for you.