This policy applies to those who have made a one-off personal donation of £250 or more to Autistica - you will be treated as a major donor. 


Here we explain our stewardship plan for supporters that significantly invest and engage in our research.

Donations of £250 or more

If you give a personal gift of £250 or more, we will send you an annual e-newsletter to update you on Autistica’s work.  

Donations of £1,000 or more

If you personally donate £1,000 or more in a year, we will automatically enrol you in to our One in a Hundred Club, and you will receive a Club e-newsletter twice a year with updates and invitations to special events. 

​Donations of £25,000 or more

Supporters who give a gift of £25,000 or more will be signed up to our Catalyst Club and receive bespoke communications that reflect the importance of your contribution. You will receive two e-newsletters a year, along with invitations to special events and to meet our research teams. If you are supporting a particular research project, we will also share an annual project update.

We currently use Mailchimp to manage our email marketing. Mailchimp store their data in the US although they comply with the EU-U.S. Privacy Shield Framework and the Swiss– U.S. Privacy Shield Framework. They do share data with third parties. We are in the process of moving to a UK-hosted email service who will secure, and keep private all data.

We transfer all contacts to our own database, Raisers Edge which is UK hosted. This system is kept updated with your marketing preferences.

What personal information do we collect?

  • Name, title/s and date of birth
  • Contact details such as postal address, email address and telephone number 
  • Whether you are a UK tax payer, so that we can claim Gift Aid on your donation  
  • How you heard of us and what kind of connection you have with our charity
  • Your motivations and reasons for donating to us; please note, we will never make this question mandatory, and fully understand if you are not comfortable telling us
  • Notes relating to your involvement with the charity, including what was discussed at meetings and if you attend and/or host an event 
  • Your feedback from your dealings with us

We may also conduct research and record information on donors and prospective donors using information that is available through other sources, e.g. publically-available information on company websites, news articles, LinkedIn, Twitter, or from third party information services such as Factary (see section below for more information). 

Some families decide to tell us about their personal connection to autism. We will record this information safely to ensure communications are appropriate and to let you know about research or events that are of particular relevance to you. 

Why do we collect personal information and how do we use it?

Successful and rewarding fundraising depends on developing good relationships with donors. Creating and maintaining an up-to-date profile on a donor helps us to build and maintain those good relationships. It also allows us to contact you in the most appropriate way and promote fundraising and event opportunities that we believe you will be most interested in.  

We do not collect sensitive personal information about our supporters unless there is a clear and valid reason for doing so. All information is processed in line with your rights, and stored on a secure database, Raiser’s Edge, which only Autistica employees and volunteers with a password can access.

Using third party information services

Understanding our supporters and their profiles allows us to apply our resources efficiently and effectively, and ensure the most suitable level of marketing is carried out across our entire supporter base.  

We work with Factary, a third party information service, to screen and analyse our database against a demographic database. This analysis includes modelling (e.g. how likely you are to respond to an event invitation) and segmenting (looking at people who are similar to you).

We do this because it allows us to understand the background of the people who support us, ensures that you receive relevant communication, and helps us to make the most appropriate requests to supporters who may be able and willing to contribute more. Most importantly, it helps us to raise the vital funds we need to deliver life-changing research.  

We will ensure your data is handled professionally and legally [DPA/GDPR] at all times by any third party data processor we engage for this activity.

Your rights

As an individual whose personal data is processed by Autistica you have the following rights:

To exercise any of these rights, please use the Contact Us form to get in touch.

If you are not happy with the way we have handled your data, and are unable to resolve the issue with us personally, you can complain to the ICO.